Rare cancer patient support specialist (wollongong)

Part time role (0.6 FTE can be worked as full days or spread over the working week)

• A flexible, friendly and supportive culture
• Market-competitive salary on offer, coupled with not-for-profit salary packaging eligibility.
• Hybrid work arrangements in Bowral / Wollongong with up to 1 FTE day WFH (based on a three day week, if working over all 5 days 2 days per week could be performed from home once indication and onboarding complete)

Rare Cancers Australia is a flexible, equal-opportunity employer.

Excellent long-term opportunity for a committed, caring and experienced Rare Cancer Patient Support Specialist who has exceptional customer service skills and an empathetic personality.

About the Role

Rare Cancer Patient Support Specialists (known internally as Specialist Cancer Navigators) play a pivotal role in providing personalised support and guidance to individuals navigating the complexities of rare cancer diagnosis, treatment, and survivorship. This position offers a unique opportunity to make a tangible difference in the lives of those affected by rare cancers by offering empathetic support, facilitating access to resources, and advocating for patient-centred care.

Reporting to the Head of Patient Programs, your key responsibilities will include:

• Serving as a primary point of contact (primarily via telephone / videoconferencing) for individuals diagnosed with rare cancers and their families, offering emotional support, practical guidance, and tailored information throughout their cancer journey.
• Conducting comprehensive assessments of individual needs, preferences, and challenges to develop personalised care plans and strategies.
• Providing information and education on rare cancers, including treatment options, clinical trials, supportive care services, and financial assistance programs.
• Collaborating closely with healthcare professionals, including oncologists, nurses, and allied health professionals, to ensure coordinated and holistic care delivery.
• Advocating for patient rights and preferences within the healthcare system, addressing barriers to access and navigating insurance, reimbursement, and disability issues.
• Facilitating connections with peer support networks, community organisations, and other relevant resources enhances social support and empowers individuals to become active participants in their care.
• Maintaining accurate documentation of interactions and outcomes, ensuring confidentiality and adherence to ethical standards.

This role is offered as a maximum-term contract aligned with government funding. However, extension or permanent placement opportunities may arise during the contract term.

About Us

Rare Cancers Australia (RCA) is a leading advocacy and support organisation dedicated to improving the lives of those affected by rare cancers. Our mission is to provide support, raise awareness, and drive research initiatives to address the unique challenges individuals diagnosed with rare cancers and their families face. Through innovative programs and collaborations, RCA strives to make a meaningful impact on the rare cancer community.

We value a caring, enthusiastic, and collaborative workplace and aim to ensure team members have the support they need to perform at their best.

About You

As someone with previous experience in the healthcare industry, you will possess a passion for positively supporting people with rare and less common cancers and have a positive attitude and approach that reflects RCA's missions and values. Furthermore, you will have high adaptability, resilience, and the ability to thrive in a fast-paced, dynamic organisational setting with a proven ability to build relationships across diverse stakeholders.

To be considered for this role, you must have relevant experience, skills, knowledge of the healthcare industry, and the required qualifications/certificates.

• Tertiary qualifications or commensurate significant experience in one or more of the following areas: nursing, social work, counselling, primary/community health development, health promotion and project management, social sciences and medicine.
• Clinical experience in oncology or rare diseases is preferred.
• Strong understanding of the psychosocial impact of cancer diagnosis and treatment on individuals and families.
• Excellent communication and interpersonal skills, conveying empathy, compassion, and respect in all interactions.
• Demonstrated ability to assess needs, develop care plans, and navigate complex healthcare systems.
• Commitment to person-centred care and advocacy for equitable access to healthcare resources.
• Proficiency in Microsoft Office Suite and electronic health record systems.

Have your own vehicle and be willing to